Yesterday's party included a diagnostic injection that hurt like hell. 1/2 of the series. Here's the short version. Insurance is not wanting to pay for my pelvic surgery to fuse my SI Joint or SIJ for short. So they are making us jump hurdles to get the preauth for the surgery approved. In the meantime, I'm in a wheelchair.
So Friday is my next and hopefully last injection, and then HOPEFULLY, insurance approval. Hopefully...
Today's party includes needing an NG Tube placed. It goes in through your nose and down to your stomach to help you feed. LOL...'feed'....like I'm some creature from the swamp who arises to 'feed'.
I wanted a different version but insurance being what it is...it is what it is.
So here is the fun part...because we fixed my swallowing issue (had a narrowing in my esophagus that we stretched and that worked) the insurance will not pay for the feeding pump. This can go from anywhere from $250-$1000.
I haven't told my husband. Good thing he doesn't just read my blog. I do plan on telling him tonight at therapy. Now, now...don't be judgy and raise that eyebrow at me. Therapy doesn't always exist in issues with marital drama. We are a different case dealing with a disorder that seeks my destruction. So a third party to help us deal with this crap was a welcome addition. Well...to me. My husband isn't someone who likes sharing all of the in's and out's with other people. He isn't someone high strung so I'm not super worried but still not sure of what his reaction will be to all of this.
So I'm malnourished is the reason for the tube. EDS'ers tend to have significant GI issues and there are EDS'ers with feeding tubes of all kinds to help mitigate the complications. The idea is that we give the GI a break with the help of the tube and then through the re-feeding, the body may kick back in on it's own. That's the hope.
One bottom line is NO MORE WEIGHT LOSS. NONE!
I'm 5'9 and 143 lbs. Normally pretty healthy right? It's not when the weight loss occurs too quickly over a two month period. Then we go into anorexia. Anorexia...there are those eyebrows again. Calm down skippy and take a seat. Anorexia Nervosa is the eating disorder. Anorexia is a clinical term for the speed of the weight loss as I understand it. Believe me...I miss food, but I'm pretty sure I'll miss life if I continue to slowly starve to death so I digress.
My silly ass had the entire day off today and what did I do with it? Slept in and went to find out the news from the GI and then decided to go back to work. WORK? Who does that when they are sick? Ok so a vast majority but still I feel pretty foolish. Yet, I do feel pretty good being around other people right now.
Besides there are worse places to be than work. I'm feeling ok about that.
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